Queensland is a large state that creates significant geographical challenges when planning a state-wide coordinated care service that has the capacity to reach as many people living with MND as possible.
The Foundation has partnered with other progressive neurological disease organisations to develop a coordination service. This approach means the Foundation will be able to share costs, take advantage of existing infrastructure, as well as share knowledge and expertise to deliver the highest quality service to people living with MND. Initially, the following regions serviced: Brisbane North, Brisbane South, Gold Coast, Ipswich, Sunshine Coast, Townsville and Toowoomba.
The Foundation's goal is to expand this service to a truly state-wide program in the not too distant future to ensure all Queenslanders have access to best practice care and support.
We currently have experienced people on the ground and in the homes of people living with MND – assisting with:
You do not need a referral to contact us.
If you, or someone you know could benefit by having one of our MND care coordinators visit, please call us today on email@example.com, or email
Julia has extensive experience in support and engagement across the community services sector as well as working as a special education teacher. After trying a career change 12 months ago, Julia was reminded of her passion for social justice and sought a role where she could support people who are more vulnerable in our community which led Julia to the Service Coordinator role.
Julia’s commitment to social justice means she’s motivated by helping her customers to explore their needs and rights and finding practical solutions. She also acknowledges the importance of her customers’ support network and helping them navigate the challenges of the disease. With her experience working in service delivery, she recognises how much a small yet significant change can make a difference to her customers’ lives.
Julia looks forward to working with people living with MND to maximise their entitlements and support them in navigating the system. Outside of work Julia enjoys spending time with her family as well as challenging herself in aerial yoga classes.
Sarah spent the earlier part of her career working with children in the childcare industry, teaching swimming in special education and with a break in between while being a stay at home mum and actively volunteering in the local school community. Returning to the childcare industry once her kids were older, Sarah noticed a change in the industry and found it wasn’t for her anymore.
Using her extensive experience working with children and her general caring instinct, Sarah moved into providing support to adults. Sarah who is driven by social justice, wanted to influence change for the many adults for whom she was providing support. This led Sarah into quality assurance, training and strategic planning in her industry where she felt she could make a real difference to the way the system operated.
Sarah is looking forward to the opportunity the Service Coordinator role provides as she wants to keep learning in her career. Sarah is focused on empowering people with MND to have the best quality of life possible as well as supporting them and their families in navigating the system.
Angie has lived in Townsville for 31 years. She loves the lifestyle of family, friends and the beach – especially when she needs to take time out and relax. Angie also enjoys travelling and interacting with people from all walks of life and cultures.
Angie started her career in real estate – spending 17 years there before moving into the disability employment services area for six years. Over the last 18 months, Angie has been a service coordinator for Spark NeuroCare in Townsville. Her role provided a critical link to support services, information and resources for people living with a progressive neurological disease.
Angie brings a wealth of NDIS experience to the Townsville Neuro Care Coordinator team including Support Coordination, Pre-planning and Plan Implementation, and Progress and Review reporting. She is an active participant in relevant local community forums and professional networks and is committed to continuous improvement in community engagement and education. Angie’s experience in developing support plans for both eligible and non-eligible NDIS customers, providing interagency referral and case management has been very well received by the Townsville community.
For the past 15 years, Janice has worked for MS Queensland as a Service Coordinator and also as an Immunotherapy RN in South West Queensland. Janice is also a trained social welfare worker.
Janice works closely with people with progressive neurological diseases and their families to provide them with Support Coordination to help reduce the impact that their disease has on their lives.
Janice enjoys delivering Support Coordination as it benefits people with progressive neurological diseases by providing them with accurate information about services and supports they require to better improve their quality of life.
Chris is based in Murwillumbah and travels throughout the Gold Coast to meet and care for people living with MND.
Chris invites you to attend the bi-monthly MND Carers Support Group meetings at Clear island Waters. These informal meetings offer a great opportunity to find out more about the support and services to assist you in your caring role.
The meetings are an opportunity to share your own experiences and to learn from each other in a supportive environment that may assist you in your caring role. Come along and enjoy a sandwich a cuppa and company.