Why we exist – MND and Me Foundation

Why we exist

The MND and Me Foundation was established by Scott Sullivan, a husband and father of two children. Scott was diagnosed with MND in 2010 at the age of 38, and sadly died from MND in April 2014. You can read Scott Sullivan’s message. You can view Scott Sullivan’s video message here.

Scott Sullivan – Founder

The MND and Me Foundation is a not for profit organisation that Scott formed to raise awareness of Motor Neurone Disease (MND) and its impact in the community. Scott saw a desperate need to assist people living with MND, and their families, to maintain their independence and quality of life for as long as possible.

  • The MND and Me Foundation Limited is a Registered Charity in Queensland and has been endorsed as a deductible gift recipient by the Australian Taxation Office as a health promotion charity, it is endorsed as being income tax and FBT exempt and it is able to access GST concessions.

The MND and Me Foundation is a significant financial contributor towards research into finding a cure for MND. In addition to raising funds to ensure a cure for MND is realised, the Foundation remains committed to improving the lives of those impacted by Motor Neurone Disease.

  • The MND and Me Foundation aims to reduce the burden of recently diagnosed patients and their families and provide practical assistance to people living with MND, and their Carers, to help them cope with present and future challenges.
  • As the symptoms of MND increase, the level of care needed to remain at home also increases. Families need to adapt to the constantly changing levels of disabilities. They need physical and emotional support. They need community acceptance.

The MND and Me Foundation intends to be there for them – providing the right solutions at the right time throughout the cycle of pre-diagnosis, diagnosis, living with motor neurone disease and following a loved one’s passing.

Fast Facts – The MND and Me Foundation

Focussing on four key areas: Care, Research, Awareness and Community Engagement, the current service offering includes:

  • Service coordination – ensuring no one faces MND alone
  • Research funding – providing grants and funding towards a cure
  • Supply of equipment (short/medium term) – filling the access gap between prescription and delivery
  • Tailored Support Groups – reaching people in metropolitan and regional areas across Queensland
  • Access to health professionals – demonstrating individual solutions for individual needs
  • Home improvement and Care grants – improving quality of life
  • Carer services – facilitating mental health and wellbeing for adults and children

The Foundation continues to cultivate its service offering to meet the changing needs of people living with MND.

You can assist by donating much needed dollars today.


Key objectives

  • To assist people living with MND and their families to gain access to health care providers and counselling services and provide funding for these services.
  • To promote community awareness of MND and its impact on those living with the disease and their families/friends through public awareness campaigns and fundraising activities.
  • To provide information about the disease and its effects to people living with the disease, their families and friends.
  • To provide opportunities, forums and events whereby people living with the disease, their friends and families can meet with others in similar circumstances to share their feelings, struggles and achievements.
  • To foster relationships and connections between the Foundation and similar organisations for the benefit of people living with the disease.
  • To support research efforts by raising awareness about latest research initiatives and by contributing financially towards the funding of research by organisations like the RBWH Foundation.